UK Parkinson's Disease Resources?

UK Related Parkinsons Disease resources : Reproduced from the Website information released by the NHS (National Health Service in the UK)

What is Parkinson's disease? 
Links to useful websites 
National contacts
West Midlands information 
Other information 

What is Parkinson's disease?
The following links take you straight to pages of information about Parkinson's disease (PD).  This information has been checked by doctors to ensure it is correct and appropriate for UK patients.

EQUIP also has pages on some other common neurological disorders:

Links to useful websites:
The following links contain information about Parkinson's disease.  The information on these websites has not been checked by our doctors, but they are rated as good quality sites.

National contacts:

There are also many other support groups for health in general - go to general health contacts  
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West Midlands Information:

  • Foundation for Conductive Education, Cannon Hill House, Russell Road, Moseley, Birmingham B13 8RD Tel: 0121 449 1569 Email: lesleyp@conductive-education.org.uk Teaches people with movement disabilities to coordinate their movements and achieve greater independence.
  • Outreach Service for Black & Minority Ethnic Communities, Suite 312, Bradford Court, 131 Bradford Street, Birmingham  B12 0NS Tel:  0121 608 1661 Email: outreach@parkinsons.org.uk  There are factsheets, audio and video also available in Urdu, Gujarati, Punjabi, Hindi and Bengali.
  • Parkinson's Disease Carers Group (Walsall), 8 Kinver Crescent, Aldridge, Walsall WS9 8LP Tel: 01922 451095
  • Parkinson's Disease Society has many contacts in the West Midlands - contact Tel: 0121 423 4825
    • Atherstone - 01675 464802
    • Birmingham North - 0121 373 6491
    • Birmingham South - 0121 550 4968
    • Bridgnorth - 01746 764519
    • Burton - 01283 536165
    • Coventry -  0247 6301205
    • Dudley - 01384 347033
    • Hereford - 01432 278955
    • Leamington/Warwick/Kenilworth - 0121 423 4825
    • Lichfield - 0121 423 4825
    • Redditch - 0121 423 4825
    • Rugby - 01926 857273
    • Sandwell - 0121 552 1783
    • Shrewsbury - 01743 872597 
    • Solihull - 0121 454 3222
    • Staffordshire North - 01782 852410
    • Stafford - 0121 454 3222
    • Stratford Upon Avon - 0121 423 4825
    • Tamworth - 01827 54991
    • Telford  - 0121 454 3222
    • Walsall - 01543 570495
    • Wolverhampton - 01902 620385
    • Worcester - 01386 751349
  • Parkinson’s Disease Nurse Specialists: 
    • East Birmingham & Solihull - 07866 672 948
    • South Birmingham - 07973 388 146
  • West Midlands Public Libraries - Information can be found at your local public library. 

Other West Midlands information can be found under General health contacts - West Midlands 
Other information sources:

  • Search the BBC news for latest news about Parkinson's disease
  • Electronic Medicines Compendium contains Patient Information Leaflets on many medicines
  • Parkinson's Disease Self-care Manual (book or CD-ROM can be updated on the Internet) - a joint publication from NHS Executive in the West Midlands and the Dutch September Foundation. Contact the Parkinson's Disease Society 020 7931 8080.
  • Parkinson Disease Society  has a large list of publications available in paper, audio and video formats, many of which are free. Contact their distributor - Sharward Services, Westerfield Business Centre, Main Road, Westerfield, Ipswich IP6 9AB  Tel: 01473 212115 Email: services@sharward.co.uk 
  • Medical Dictionary

There are many websites that sell products that might be of interest to patients but we are not providing links to these sites.  There are also email discussion groups and chat rooms that might help some patients, but as we are unable to validate the information you may receive, we are unable to provide links to these sites.

Parkinson's disease news on the Web

Alzheimer's Society Comment On Research Suggesting That Sleep Disorder May Be An Early Sign Of Dementia Or Parkinson's ... (Medical News Today)
People who act out their dreams through kicking and crying out in their sleep may go on to develop dementia or Parkinson's disease, according to a study published in the online issue of Neurology. In the research 93 people with REM sleep behaviour disorder who had no signs of a neurodegenerative disease were followed for an average of five years.

Vital signs (The San Angelo Standard-Times)
Adult Diabetes Support Group: Meets at 7 p.m. the second Thursday of each month at Trinity Lutheran Church, 3536 YMCA Drive. For more information, call Bill Korzen at (325) 949-6535.

Goodbye, Senator (The Woonsocket Call)
NEWPORT — Americans great and small, and at least one member of European royalty, sat in the boxed-in pews of the historic Trinity Episcopal Church in Newport Monday to pay their final respects to Sen. Claiborne Pell and celebrate what one eulogist called a “life defined by service.”

Rhode Island Sen. Pell, creator of Pell Grants, dead at 90 (Spartanburg Herald-Journal)
Former six-term Senator Claiborne Pell has died after a long battle with Parkinsons disease. He was 90.

Upcoming events - Jan. 4 (Broomfield Enterprise)
Special events

Biden, Clinton may attend Pell funeral (WPRI Providence)
A Senate delegation from Washington will be attending the funeral of former U.S. Senator Claiborne Pell, and among them may be Vice President-elect Joe Biden and Sen. Hillary Clinton.

Courage of Michael J Fox as he battles Parkinsons (Daily Mirror)
Actor Michael J Fox reveals what life is like living with his developing Parkinsons.

New Year 2009: Leading thinkers offer predictions of 'next big thing' (Daily Telegraph)
Leading thinkers including Craig Venter and Ian McEwan have marked New Year 2009 by predicting what will be the next big thing to shape the future.

Sleep Disorder Could Signal Neurological Disease (Health Scout)
Finding could help docs spot those at risk for dementia, Parkinsons, researchers say.

Sleep Disorder Could Signal Neurological Disease (HealthDay via Yahoo! News)
WEDNESDAY, Dec. 24 (HealthDay News) -- People with a disorder that causes them to kick or cry out during deep sleep are more likely to develop dementia or Parkinson's disease, a new Canadian study suggests.